NEW JOB!

Honestly sorry again, for not keeping my promise of blogging recently.

It’s been crazy busy. So I started last year at Wates Living Space as an office junior/receptionist. I am now moving up in the worlfullsizeoutput_cb0d. I am now Commercial Administrator. Which comes with a lot more responsibility. Its been worth the hard work of the past year at Wates and at my previous employer.

It is safe to say that hard work does pay off. I left Leicester High School for girls after just one year after my A Levels and although it seemed like the scariest thing ever at the time it was the right decision for me as an individual. Everyone is different and no ones story is the same. So do what you want because I also blessed to have been given this opportunity and will continue to work hard and get to where I want to be. Read more here: https://emilygoldsmithblog.wordpress.com/2016/09/03/the-past-year/

Other than my new job, I have been planning my boyfriends birthday and I swear to god it gets harder to know what to buy each year! Hiding them is definitely the hardest bit of all. He is definitely like a kid in a toy shop. So if you have ever got your partner something unique and different any ideas are appreciated as I feel like I am forever buying playstation stuff.

Of course its been easter and we did some baking together too and ate way too much chocolate. I have donated blood also again since my last blood donation blog.

Honestly I will one day have the time to blog more regularly. I know this seems like a crazy blog but its just to let you know I am still here basically. Volunteering has gone mental and the Leicestershire and Rutland team are now well underway for making changes in the network! Keep your eyes peeled for anything upcoming.

I just wanted to say basically that anything is possible and you don’t have to follow what everyone else is doing, this is your life and you need to do what makes you happy.

Emily x

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My Year so far

Apologies for not writing sooner, this year has been a manic start for me.

I have had a new car, after breaking down on the motorway, which has been one of the scariest experiences of my life so far. But now I have a new car – which is getting me from A to B and I feel so much safer.

My contract is coming to an end with Wates Living Space, I am hoping that it will be extended but I haven’t heard anything at the moment. So in the mean time, I am on the job hunt again. I find that looking at applying for jobs is so frustrating. I think I find it particularly frustrating because I don’t have a career path in mind as of yet. I know I want to come out of admin but not to sure what yet.

Volunteering wise has become really busy. I am now looking into the Social Media for the Leicestershire and Rutland team, so this is something which will be set up from scratch. I am looking forward to this challenge tho, I am also ready to get stuck into a new challenge.

Crohns and Colitis head office have contacted me! I was so surprised when they messaged me. I have been asked to participate in some ‘research’ and setting up of support news letter for family and friends. I am so thrilled they have contacted me and feel that my hard work with my blog, and the support I give to others has all been worth it. Currently I have been asked to proof read and give feedback on what they have. However, afterwards there is a potential opportunity to give advice.

I have got things planned for the remaining of the year and would like to make my blog more personal, so I can connect to you all some more. As I feel this is something which is really important moving forward for my blog.

I hope you are well and thank you for your continued support and for reading

 

Emily x

Getting a Diagnosis

You will probably only need to have a few of the tests listed below.  However, Inflammatory Bowel Disease is an ongoing condition, so some of the tests may need to be repeated from time to time, or extra tests may be needed.


Although Crohn’s Disease and Ulcerative Colitis are different conditions that affect different parts of the digestive tract, doctors are likely to use the same tests to help them establish their diagnosis.

BLOOD AND STOOL TESTS

Blood tests can show whether you have inflammation somewhere in your body and whether you are anaemic. They can also show whether you are getting the correct vitamins and minerals, and check whether organs such as your liver and kidneys are functioning correctly.

Your stools can also be tested for signs of bleeding or inflammation, and to check whether your diarrhoea is caused by an infection. If inflammation is confirmed, you may then have an examination to look inside your body, such as an endoscopy, x-ray or scan.

ENDOSCOPIES 

Endoscopy is the general name for a type of test which allows a specialist doctor or nurse (an endoscopist) to look directly at the inside of the digestive system, using an endoscope.

In an endoscopy a doctor or specialist endoscopist uses an endoscope – a long thin, usually flexible, tube with a camera in its tip – to examine your digestive system. There are several types of endoscopy which can have different names according to the part of the gut being examined.  An upper GI endoscopy is used to look the upper part of your digective system, such as the oesophagus and stomach.  It is inserted through the mouth.

A colonoscopy or sigmoidoscopy is used to look at the colon. A sigmoidoscope (a short endoscope) or a colonoscope (a longer and more flexible endoscope) will be inserted through the anus (back passage) to examine the rectum and colon.

Endoscopies like these should not be painful but may be uncomfortable, so you may be given a sedative to help you relax. Biopsies (small samples of tissue) are often taken during an endoscopy. These can then be examined under a microscope to confirm the diagnosis.

A capsule endoscopy is a special sort of endoscopy where you swallow a tiny camera (about the size of a small grape) which passes through the digestive system, taking photos of the inside of the gut.  These photos are transmitted to a data recorder worn around the waist. The capsule is disposable and passes out of the body naturally in a bowel movement. Not all centres offer capsule endoscopy and it may not be suitable for everyone.

X-RAYS

There are lots of different types of X-rays used in IBD.  Plain abdominal x-rays may be used in an emergency or in initially diagnosing people with IBD.

CT scans use a whole series of x ray images to build up a detailed picture of the body. The scanner is donut shaped, and X-rays are taken at different angles, the images produced are put together to produce 2D (two dimensional) cross sections of the body.

The digestive system does not always show up well on x-rays, so you may be given barium to help produce a clearer image.  This is a harmless white substance which is not absorbed into the body, but instead forms a temporary coating on the inside of the gut.  X-rays cannot pass though the barium, so this gives a clearer outline of the gut in x-ray images.  The barium can be given as a drink to help show up problems in the functioning in the stomach or small intestine, or in an enema to show up inflammation in the colon.

ULTRASOUNDS

Ultrasound scanners work by using very high frequency sound waves to create an image.  A handheld sensor is moved over the surface of the skin, and this sends out sound wave signals which ‘bounce off’ internal organs as an echo.  The scanner then picks up the echoes and converts them into an image.

Ultrasound scans may be used to look for gall stones and kidney stones.  They are also good at detecting collections of fluids and thickened and inflamed parts of the bowel wall.  Ultrasound may also show up abscesses and fistulas (abnormal channels linking different parts of the bowel).

MRI SCANS

MRI scans are used to produce cross sectional images of the body.  They are being increasingly used to investigate IBD, particularly in children, because they avoid the use of x-rays.  Instead, they use strong magnetic fields and radio waves to create images of the inside of the body.

The MRI scanner looks like a long tube or tunnel, and you will be asked to lie on a moveable table which slides slowly inside this tunnel. MRI scans are a good way of looking at soft tissues such as muscles and the gut, as well as organs such as the liver.  This is because it is particularly effective in detecting fistulas (abnormal channels linking different parts of the bowel), and abscesses, and distinguishing between active inflammation and scarring.

You can find more detailed information about all the tests mentioned in Tests and Investigations for IBD.

Keep a look out for stories in the Crohn’s and Colitis section!

Emily x

Happy New Year!

So sorry it’s been so long, it’s been really busy for me the past few weeks.

I hope you all had a fantastic Christmas and New Year. Whilst although I haven’t been ‘physically’ blogging. I have been planning what you guys can expect this year.

I will:

* Continue with Parental Relationships Breakdown

* Share stories/blogs of those who are suffering with Crohns Disease or IBD

* What I get up to – holidays, jobs, family etc

* Plans for the Leicestershire and Rutland Volunteer team

I am also planning on sharing recipes again maybe – what do you guys think? Would you want me to share certain types of food – drop me an email with your ideas 😊

I have now been blogging for over three years and although at times it can be hard to keep on top of it, as my daily life takes over. I haven’t given up on it, I still hear from the people who read it and it’s down to all of you who read this, it’s you who make it all worth while. It makes me feel like I have some worth. I just want to say thankyou for your support if you are a continuous reader or a new reader all of your comments and feedback are great.

With my plan I am hoping to continue to share more about me and my story. As I am sure many of you are aware it can be hard to open up sometimes about what’s happened in our lives or what is happening but I am a strong believer that anyone can help you if you give them the chance.

Many of my family and friends have said I try to save the world too often and although I try my up most, to do everything I can for everyone it’s not always possible. That’s why I blog, I want people to use it as an escape even if it’s for 10 minutes.

Keep smiling and don’t give up because there is always a light at the end of tunnel. It may seem miles away but don’t stop believing.

Emily x

Leicestershire and Rutland Updates 2017

Hi All,

I am now finally a member of the Leicestershire and Rutland Crohn’s and Colitis.

This is a page where I will update whats happening and near by events.

Alternatively you can follow our facebook page: https://www.facebook.com/CrohnsColitisLeicestershireandRutland/


November 2nd 2017 – Pub Evening

The Manor, Glen Parva

The Ford, LE2 9TL, Leicester

This isn’t our attempt at getting you drunk, this is more us experimenting on how to best serve you. This year we have been quiet with General Meetings compared to previous years. This is partly due to a smaller organising team (If you wish to join the team please get in touch) and partly because member involvement has dropped a little recently.
We are trialling more relaxed meet ups. Small gatherings which do not need to be so focused on IBD but more on the social support. We can talk bowels or we can talk everything but. We understand not everyone likes an early morning or even tea and coffee, so we thought we would try a meet up in a pub. Obviously this is more for the adults amongst you however younger members are welcome if accompanied by an adult. You do not need to drink alcohol, or be there for long, you just need to come along and either lend an ear or be willing to make new friends. Glen Parva Manor is a large pub with plenty of parking. We’ll pick a quiet corner where we can talk freely.
If you can’t find us on the evening (Ben will be wearing his CCUK purple T-Shirt though) please send us a Facebook message or ask the bar staff on arrival. You are welcome to arrive anytime between 7:30pm and 9pm. We hope to make a bunch of new friends. If it is successful we will endeavour to do more.

If you are fed up with the locations of some of our meetings, then please think of somewhere near you that you could meet. We will help you set up a meeting and support you fully.


November 25th – Laurence Jones gig at The Raven Hotel, Hosted by Corn Market Blu
The fantastic Laurence Jones will be entertaining us for the evening and is coincidentally also a sufferer of IBD.
Laurence was Introduced into the “Hall of fame” in the “British Blues Awards” for winning “Young Artist Of The Year 2014, 2015 & 2016” and Voted “Best European Guitarist” in the “European Music Awards” in 2015.
There will also be a very special guest on the night, the sensational Aiden Pryor Band.
Once again Corn MArket Blues will be raising funds and awareness for Crohn’s and Colitis UK
Follow the link below to the Corn Market Blues Facebook page for more information (This is not a Crohn’s and colitis UK event – we are only there as representatives of the charity)

If you would like to buy tickets: http://cornmarketblues.limitedrun.com/tickets


December 16th – Christmas with The Salvation Army

Crohns and Colitis UK, Leicestershire and Rutland Group, have been chosen as the charity of choice for the Leicester South Salvation Army this Christmas.
Half way through the concert a short video about Inflammatory Bowel Disease will be shown including. Information regarding the support available from our group will also be displayed.
Our group will be manning a table at the event, giving out information and being a face for the charity.
You are invited along.
THIS IS NOT A Crohn’s and Colitis UK event. Money is being donated by the Salvation Army to our charity and we are invited along to raise awareness.
Each year this fantastic event brings the community together for a Christmas Sing Song.
Tickets are available from:
http://www.leicestersouthsa.org.uk/
Tickets will be £6.

More details to follow.


If you have any questions about any of the events above please do contact me via the contact me page.

Aloha, Colon–Booked My Colectomy and Not Looking Back

I found this blog, and what an inspiration, I feel so privileged to have met some of you at the meeting on Saturday and to be able to share your stories.

If you would be happy to share your story, please do contact me via my contact me page.

I have now officially become a volunteer for the Leicestershire and Rutland Crohn’s and Colitis. I had my first meeting last Saturday.  We had a great turn out on Saturday and were joined by two IBD nurses, who are trying to improve the helpline! If you have any suggestions or feedback please leave a comment below and I will make sure all of your points are raised in our next meeting. #leicestershireandrutland I look forward to hearing some of your ideas and suggestions.

My Life as a Case Study Blog:

So the obvious–I’m f*cking done being sick. Things have been worse the past couple of weeks, owing to our moving house (stress), my Stelara is wearing off (like clockwork), I lowered my Prednisone (down to 20mg), and the last f*cking straw–wait for it–I had the flu last week (just shoot me).

After a couple days of toileting 12+ times per day, mostly blood, straining (felt like my body was trying to expel my colon with brut force), dehydration, pain, weakness.etc. I called up my IBD Nurse and said “Listen up–I am well and truly ready to schedule surgery. Tell IBD Specialist she won’t need to have ‘the talk’ with me on Monday and we can just get down to business.” And I meant every word. Something in me just ‘clicked’ and I knew I was meant to have the surgery, and I felt relief and resolve to move forward.

So I met with IBD Specialist yesterday as well as the Colorectal Surgeon (CRS) and the Ostomy Nurse. IBD Specialist said “Just in case you’re interested, you could try Entyvio, Cimzia, or a clinical trial drug”, but I shook my head and said “Nope, drug therapy is not for me. I failed 3 biologics–they all worked but wore off too quickly because I metabolize them too fast, so drugs are not the answer”. Which IBD Specialist wholeheartedly agreed, and basically wished me well and sent me off to the CRS. I asked the CRS a few questions and made it known that I may look like hell *now* but I used to be hot, so minimal scarring would be ideal, as I aspire to be an athlete when I’m well again and to look good naked. I’ll get into the logistics of things in another post.

I saw the Ostomy Nurse, got marked where my stoma will go, and am now testing out a Coloplast mio bag. Testing the bag out is a game changer! Most people don’t but I think everyone should. It’s not bad at all–I forget it’s even there! Easy to conceal under clothing. BG thinks it’s cool. I was building it up in my head that it would be strange and awkward, but it’s not.

Of course then today my colon has been much better and I’m like “WTF colon–quit playing games” but I am still ready for surgery. Mr. MLACS only has to use a week of vacation and they’ll let him work from home the second week, so he doesn’t need to file FMLA. He and BG will stay in a hotel near the hospital (since it is a 2hr drive from where we live) until I’m released.

Ok so so so exhausted, but just wanted to let you guys know “the scoop”.

T-minus TWO WEEKS until surgery!!!

I will be continuously updating this part of my blog, and sharing any volunteering dates you may be interested in attending.

Parental Relationship Breakdown

Hi All,

Sorry it’s been so long, I have been working hard on the Crohn’s and Colitis section of my blog and my volunteering.

So I am now 20 and I have recently reflected on how much people have come in and out of my life.  It is fair to say that the relationship with my parent(s) has been challenging at times, of course all children go through this stage. My story I believe is slightly different. It is taking a lot of courage to start sharing my story. There is far too much to explain in one blog, but I want others to know that if family life at home isn’t going to well you aren’t alone.

My Story Part 1:

I was five when my parents got divorced, I can remember some of what happened. I was so young though and it still shakes me up slightly to the day. I remember a lot of arguments but I believe that it was all very well hidden from myself and my sister. At the time my sister was only about 1. My sister doesn’t remember anything about it. I tried to protect her from as much as I possibly could, I saw it as my job.

I do believe that reason I am the way I am today is due to the experience when I was so young. I had a great childhood, i had lovely Christmas’s and Birthdays. For the majority of my birthday’s my parents celebrated it with me together. I don’t have many of my baby/childhood photos, i don’t know if my father has them or not. It all changed when i was about 7/8. My grandad passed away when i was 7/8 and to me this is when i can remember alot more, as i was getting older.

When my grandad passed away, i struggled; me and my grandad were very close. I am aware that my Grandad and my father were very close and i think this is were the problems started. Well that is what i believe anyway. I guess i will never know the whole truth. After so many years, i do want to share my story and my experience and help those understand it from a child’s perspective or just to help people understand how peoples actions, can have long term effects on someone.

I will continue Part 2, within the next couple of weeks.

Emily x